I always felt like I was on eggshells with the subject of McKayla's disease. I never wanted to bring it up, and neither did she.Finally, one day we we...t to see her doctors and got the full scoop. We educated ourselves as best we could and sought out the best advice that was available. We joined support groups, mailing lists and discussion boards.They physical symptoms would come first. They would start slowly, gradual involuntary jerky movements. Then they would become more frequent and spread. I couldn’t put a finger on it, but it felt very much like my mental impression of what the place would be like. It wasn’t a perfect match. The lane had been paved and the barns were painted white or were covered in metal sheeting for siding. I’d imagined them being red for some reason, with dirt lane and a rustic porch on the house, but none of that was true. The feel of the yard matched the impression though. It was the details I’d gotten wrong.We’d just come to a stop when her mother came to. More

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